The boy whos skin fell off

Post by **DRuM** » Sun Oct 09, 2005 11:39 pm

They're running a documentary on tv of this guy with a rare condition where his skin falls off. Man, it's disgusting. His helper was peeling off ( or putting on) his shirt, and his body was a complete and utter mess of scabs and green stuff. I'm sure he's glad he's dead now. I couldn't watch anymore of it, it's quite depressing. He had to live 36 years of that pain. Anyone seen it before?

Post by **mjrpes** » Sun Oct 09, 2005 11:43 pm

pics?

Post by **phantasmagoria** » Sun Oct 09, 2005 11:47 pm

you could have posted this was on.

I just wasted an hour of my life watching the Bunker until i turned it off.

Post by **andyman** » Sun Oct 09, 2005 11:52 pm

Post by **DRuM** » Sun Oct 09, 2005 11:52 pm

I didn't know, tv was on in the background while I was playing return to mysterious island. There was a programme on called ' the 50 best documentaries', including that one. Then it seemed they wre running the full documentary after but I'm not sure, I just turned round and saw a bit of it. Then turned away!

Post by **DRuM** » Sun Oct 09, 2005 11:54 pm

http://www.channel4.com/health/microsit ... _fell_off/

Poor guy, what a complete nightmare to live with that. Face looks fine, but you should see the top of his head and his body. You'd think it was special effects from a horror movie.

Post by **inolen** » Sun Oct 09, 2005 11:55 pm

http://en.wikipedia.org/wiki/Harlequin_type_ichthyosis

Edit: Doesn't appear to be the same condition.

Post by **phantasmagoria** » Sun Oct 09, 2005 11:57 pm

http://www.ispub.com/ostia/index.php?xm ... lequin.xml

urg, that's nasty. Don't click the link if you don't want nightmares

Immediately after transfer to our neonatal intensive care unit, the baby was nursed in a humidified incubator maintained at 33(C. As peripheral venous access was difficult, an umbilical venous line was set up. An extra 25% allowance was provided for fluid and calorie requirements from the first day. After taking appropriate cultures, antibiotics were commenced in order to prevent infection. Vaseline containing five percent lactic acid and local antiseptics were applied topically. Ectropion was covered with eye pads soaked in saline.

Initially progress was slow. The plate like scales split and peeled off revealing glazed and erythematous skin underneath. There were necrotic areas on the tips of the fingers. He did not tolerate oral or N/G feeding and parenteral route for nutrition was used. His temperature was 38(C on the 16th day of admission. He was investigated for possible sites of sepsis. Twenty-one days after admission he had a cardiorespiratory arrest. A post-mortem examination could not be conducted. No micro-organisms grew in the cultures.

Why even bother to try and keep him alive? it's pretty obvious he's fucked.

Post by **saturn** » Mon Oct 10, 2005 12:01 am

It's a horrible condition. I once saw a patient with Dystrophic Epidermolysis Bullosa, covered with many blisters and red raw skin lesions :/

Post by **andyman** » Mon Oct 10, 2005 12:03 am

phantasmagoria wrote:http://www.ispub.com/ostia/index.php?xmlFilePath=journals/ijpn/vol2n1/harlequin.xml

urg, that's nasty. Don't click the link if you don't want nightmares

Immediately after transfer to our neonatal intensive care unit, the baby was nursed in a humidified incubator maintained at 33(C. As peripheral venous access was difficult, an umbilical venous line was set up. An extra 25% allowance was provided for fluid and calorie requirements from the first day. After taking appropriate cultures, antibiotics were commenced in order to prevent infection. Vaseline containing five percent lactic acid and local antiseptics were applied topically. Ectropion was covered with eye pads soaked in saline.

Initially progress was slow. The plate like scales split and peeled off revealing glazed and erythematous skin underneath. There were necrotic areas on the tips of the fingers. He did not tolerate oral or N/G feeding and parenteral route for nutrition was used. His temperature was 38(C on the 16th day of admission. He was investigated for possible sites of sepsis. Twenty-one days after admission he had a cardiorespiratory arrest. A post-mortem examination could not be conducted. No micro-organisms grew in the cultures.
Why even bother to try and keep him alive? it's pretty obvious he's fucked.

OMFG THIS IS SICK YOU SICK SICK PERSON

Post by **phantasmagoria** » Mon Oct 10, 2005 12:06 am

I have a phobea of things like severe eczema and psoriasis, Harlequin Fetus going to invade my dreams tonight

Post by **DRuM** » Mon Oct 10, 2005 12:20 am

Christ, that is horrendous.

Post by **Freakaloin** » Mon Oct 10, 2005 12:24 am

DRuM wrote:

moron alert?...

Post by **Cooldown** » Mon Oct 10, 2005 1:25 am

They've shown the show on TLC here in the US.

Post by **ajerara** » Mon Oct 10, 2005 3:14 am

it's too bad you can't euthanize people in some cases. They would never let a dog suffer his whole life with a condition like that.

Post by **Eraser** » Mon Oct 10, 2005 7:44 am

ajerara wrote:it's too bad you can't euthanize people in some cases. They would never let a dog suffer his whole life with a condition like that.

Here in the Netherlands euthanasia is legal under certain circumstances

Post by **brisk** » Mon Oct 10, 2005 7:45 am

Its a horrible condition, but the documentary is very touching. Despite all the shit he had to deal with, he still remained positive, and humourous. The scene where he was "using the sob story" on Nell Mcandrew was superb

Post by **brisk** » Mon Oct 10, 2005 7:47 am

This is him.

Post by **Dr_Watson** » Mon Oct 10, 2005 8:58 am

is that his "helper" ?

Post by **MKJ** » Mon Oct 10, 2005 9:07 am

helps him with his cock, no doubt
fucking golddigger

Post by **Pauly** » Mon Oct 10, 2005 9:27 am

It's a very harsh documentary. At the start you actually see him sitting there dead in his wheelchair.

Makes you realise how grateful you should be really, even Brisk.

Post by **PhoeniX** » Mon Oct 10, 2005 9:52 am

Dr_Watson wrote:is that his "helper" ?

It's Nell McAndrew some model over here.

Post by **4days** » Mon Oct 10, 2005 12:44 pm

Pauly wrote:Makes you realise how grateful you should be really, even Brisk.

lol

anyone see the one about the lad with testicular cancer (was called 'bollocks to cancer')? at the start of the show i thought maybe he didn't grasp how serious the situation was, but as it went on, realised he was just really damn brave about it.