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The boy whos skin fell off

Posted: Sun Oct 09, 2005 11:39 pm
by DRuM
They're running a documentary on tv of this guy with a rare condition where his skin falls off. Man, it's disgusting. His helper was peeling off ( or putting on) his shirt, and his body was a complete and utter mess of scabs and green stuff. I'm sure he's glad he's dead now. I couldn't watch anymore of it, it's quite depressing. He had to live 36 years of that pain. Anyone seen it before?

Posted: Sun Oct 09, 2005 11:43 pm
by mjrpes
pics?

Posted: Sun Oct 09, 2005 11:47 pm
by phantasmagoria
you could have posted this was on. :(

I just wasted an hour of my life watching the Bunker until i turned it off.

Posted: Sun Oct 09, 2005 11:52 pm
by andyman
Image

Posted: Sun Oct 09, 2005 11:52 pm
by DRuM
I didn't know, tv was on in the background while I was playing return to mysterious island. There was a programme on called ' the 50 best documentaries', including that one. Then it seemed they wre running the full documentary after but I'm not sure, I just turned round and saw a bit of it. Then turned away!

Posted: Sun Oct 09, 2005 11:54 pm
by DRuM
http://www.channel4.com/health/microsit ... _fell_off/

Poor guy, what a complete nightmare to live with that. Face looks fine, but you should see the top of his head and his body. You'd think it was special effects from a horror movie.

Posted: Sun Oct 09, 2005 11:55 pm
by inolen
http://en.wikipedia.org/wiki/Harlequin_type_ichthyosis

Edit: Doesn't appear to be the same condition.

Posted: Sun Oct 09, 2005 11:57 pm
by phantasmagoria
http://www.ispub.com/ostia/index.php?xm ... lequin.xml

urg, that's nasty. Don't click the link if you don't want nightmares :(

Immediately after transfer to our neonatal intensive care unit, the baby was nursed in a humidified incubator maintained at 33(C. As peripheral venous access was difficult, an umbilical venous line was set up. An extra 25% allowance was provided for fluid and calorie requirements from the first day. After taking appropriate cultures, antibiotics were commenced in order to prevent infection. Vaseline containing five percent lactic acid and local antiseptics were applied topically. Ectropion was covered with eye pads soaked in saline.

Initially progress was slow. The plate like scales split and peeled off revealing glazed and erythematous skin underneath. There were necrotic areas on the tips of the fingers. He did not tolerate oral or N/G feeding and parenteral route for nutrition was used. His temperature was 38(C on the 16th day of admission. He was investigated for possible sites of sepsis. Twenty-one days after admission he had a cardiorespiratory arrest. A post-mortem examination could not be conducted. No micro-organisms grew in the cultures.
Why even bother to try and keep him alive? it's pretty obvious he's fucked.

Posted: Mon Oct 10, 2005 12:01 am
by saturn
It's a horrible condition. I once saw a patient with Dystrophic Epidermolysis Bullosa, covered with many blisters and red raw skin lesions :/

Posted: Mon Oct 10, 2005 12:03 am
by andyman
phantasmagoria wrote:http://www.ispub.com/ostia/index.php?xmlFilePath=journals/ijpn/vol2n1/harlequin.xml

urg, that's nasty. Don't click the link if you don't want nightmares :(

Immediately after transfer to our neonatal intensive care unit, the baby was nursed in a humidified incubator maintained at 33(C. As peripheral venous access was difficult, an umbilical venous line was set up. An extra 25% allowance was provided for fluid and calorie requirements from the first day. After taking appropriate cultures, antibiotics were commenced in order to prevent infection. Vaseline containing five percent lactic acid and local antiseptics were applied topically. Ectropion was covered with eye pads soaked in saline.

Initially progress was slow. The plate like scales split and peeled off revealing glazed and erythematous skin underneath. There were necrotic areas on the tips of the fingers. He did not tolerate oral or N/G feeding and parenteral route for nutrition was used. His temperature was 38(C on the 16th day of admission. He was investigated for possible sites of sepsis. Twenty-one days after admission he had a cardiorespiratory arrest. A post-mortem examination could not be conducted. No micro-organisms grew in the cultures.
Why even bother to try and keep him alive? it's pretty obvious he's fucked.

OMFG THIS IS SICK YOU SICK SICK PERSON

Posted: Mon Oct 10, 2005 12:06 am
by phantasmagoria
I have a phobea of things like severe eczema and psoriasis, Harlequin Fetus going to invade my dreams tonight :(

Posted: Mon Oct 10, 2005 12:20 am
by DRuM
Christ, that is horrendous.




































Image

Image

Posted: Mon Oct 10, 2005 12:24 am
by Freakaloin
DRuM wrote:

Image
moron alert?...

Posted: Mon Oct 10, 2005 1:25 am
by Cooldown
They've shown the show on TLC here in the US.

Posted: Mon Oct 10, 2005 3:14 am
by ajerara
it's too bad you can't euthanize people in some cases. They would never let a dog suffer his whole life with a condition like that.

Posted: Mon Oct 10, 2005 7:44 am
by Eraser
ajerara wrote:it's too bad you can't euthanize people in some cases. They would never let a dog suffer his whole life with a condition like that.
Here in the Netherlands euthanasia is legal under certain circumstances

Posted: Mon Oct 10, 2005 7:45 am
by brisk
Its a horrible condition, but the documentary is very touching. Despite all the shit he had to deal with, he still remained positive, and humourous. The scene where he was "using the sob story" on Nell Mcandrew was superb :)

Posted: Mon Oct 10, 2005 7:47 am
by brisk
Image

This is him.

Posted: Mon Oct 10, 2005 8:58 am
by Dr_Watson
is that his "helper" ?

Posted: Mon Oct 10, 2005 9:07 am
by MKJ
helps him with his cock, no doubt
fucking golddigger >:E

Posted: Mon Oct 10, 2005 9:27 am
by Pauly
It's a very harsh documentary. At the start you actually see him sitting there dead in his wheelchair.

Makes you realise how grateful you should be really, even Brisk.

Posted: Mon Oct 10, 2005 9:52 am
by PhoeniX
Dr_Watson wrote:is that his "helper" ?
It's Nell McAndrew some model over here.

Posted: Mon Oct 10, 2005 12:44 pm
by 4days
Pauly wrote:Makes you realise how grateful you should be really, even Brisk.
lol

anyone see the one about the lad with testicular cancer (was called 'bollocks to cancer')? at the start of the show i thought maybe he didn't grasp how serious the situation was, but as it went on, realised he was just really damn brave about it.